Wednesday, April 15, 2009

My fishermen!

Since the weather has started to warm up Dex and the boys have become quite the fishermen. Last week they caught 7 catfish! Dexter got a little creative and decided to put trolling motor on the back of our paddle boat! Yes, I did say a motorized paddle boat! That is my wonderful husband, he wouldn't be Dexter if he wasn't coming up with these crazy ideas. Dexter, our good friend Ryan and the boys took the boat out to Smithville Lake to lay catfish lines to soak overnight. I was really worried about the boys going--its never good to try something out for the first time when the kids are there! I am glad we invested in life jackets a few years ago! When I talked to Dexter tonight he told me the funniest story! I guess Preston was completely scared. He didn't say a word the whole time they were on the boat, P just sat there wide eyed watching with his life jacket on.Preston must have been terrified because Preston is never quiet. Dex said that he started crying that he was scared on the way back to the truck. He then decided to tell me that the kids boots got wet because it was a "little bit" rough and water was splashing in the boat. I can only imagine how unsafe it was for them to be out in the middle of the lake on a motorized paddle boat. I think I would have been a bit scared myself. It was probably a good thing I wasn't there! Ethan on the other hand was completely opposite from Preston. I guess E wanted to get in the water, kept hanging over the side of the boat and found it very cool to pee off the edge of the boat. (Thank god for boys!) Dex said that once E found out he could pee off the boat he wanted to poop off the edge of the boat. Dex said it took a whole lot of convincing to get E off that idea. It sounds like they had so much fun and I wish I could have been there with them!

MRI

I spoke to the nurse at our neurologist office today and she said the MRI was "within normal limits". I felt very relieved. As a hem/onc nurse I have to admit that I was a bit nervous that there could be a brain tumor found (and No he didn't have any symptoms of a brain tumor--just an occasional headache) --whew! that worry is over with--haha! I asked the nurse what the next step was and when we would come back to see Dr. F. She said that Dr. F would look at the results and let us know. Being an impatient mother I asked how long that would take. She mumbled something about him being on call in the hospital and that he would be dealing with the kids in the hospital first, I asked if it would be this week and she said probably not, maybe next week. I am a bit frustrated because I want to know what all this means. I have been waiting 5 weeks to have the MRI done and just want to know what the plan is. I want to scream! I have so many questions. There was so many scenarios Dr. F gave us when we met with him and most of them depended on the results of the MRI. I feel like this is not important to anyone. I have tried to use the wonderful web to looks stuff up but it hasn't been too helpful. I guess my only option is to wait!

Sunday, April 12, 2009

Easter Weekend

Finally after a four year wait our basement is finished. The carpet was installed Saturday morning. It looks great! I am so excited to add an extra 800 sq feet of living area to our home. We are so proud of it and the best part is that we did not accrue any debt from it. We definitely couldn't have done it without the great help of our friends. We are so lucky to know someone in every area of labor work.
Ethan's little body decided to get sick Saturday and has been running high fevers since. The poor little guy was a trooper and tried his best to have a fun Easter Sunday. Thank god for Motrin and Tylenol. Dexter and E stayed home while P and I went to mass. We all went to my sisters for the family Easter egg hunt and dinner. Unfortunately, I dropped and broke my camera in LA so I have to borrow my moms so I can post some pics.
Tomorrow is P's MRI. I am very anxious and nervous to have it done and find out the results. I have to admit that I have been in a bit of denial about all this epilepsy stuff since seeing the neurologist. I really don't like to think about P having to live with a chronic/acute disorder. Its scary to think about all the things that can happen to him and at this age he doesn't "really" know what is going on or what all these tests mean. He is so good about everything though. Please say a prayer for us tonight and tomorrow that the sedation goes smoothly and the MRI is negative for a seizure lesion or anything else. While we are on the prayer note please say a prayer for Jason, Amber and Evan Smith. They are a new family going through some tough times. Please pray that Amber can get over this infection and make it home so their family can be together in one place.

That's all for now, Goodnight!

Saturday, April 4, 2009

Livin it up in LA!


Nins and I with our Pretty Flower

Dre Has these roses all around her place. I heart this pic.
Dre taking a quick nap on the lawn

Us girls on Venice Beach.

So we finally made the trip. the flight was great minus the 2 year old kicking and screaming behind us our whole flight. It feels so good to be here, I have definitely need a break from life. I am the biggest moron and left my cell in KC. So yes, if you are calling or texting me and I have not returned my calls I am alive and without a cell.
Dre's place it wonderful. It is seriously like 2 blocks from the beach. Santa Monica is great and we have done nothing but walk everywhere. Yesterday we spent hours walking the beach and the boardwalk in Venice. I love how free everyone is here. It is all about organic, freedom and hope. Tonight is Dres big birthday bash and I am looking forward to a great seafood dinner and a night of dancing on the beach.
"Can't stop the waves but you can learn how surf" Love Apes:)