After the eventful weekend with P I decided to call the doctor to inform them of the seizure he possibly had Saturday. At my pediatricians office you must call the triage line in order to make an appointment or talk to someone. I immediately got a call back. The triage nurse was one that I was familiar with and I have had problems in the past. After telling her the story of what happened she made a little chuckle and said to me "your telling me that a child had an altered level of consciousness and no one called 911 that is absurd" this totally set me off. I informed her that this has happened in the past and the last time it happened the doctor told me that there was nothing to do unless he went apneic. I informed her that the father of the birthday boy was a paramedic and that I was a pediatric nurse. We exchanged arguments for quite some time. I totally said a few words to her that were not appropriate (knowing the language I use) but I was so pissed off that she questioned my judgement as a mother. She made it seem like I did not have the best interest in my child. I went on to tell her the love a mother has for her kids always keeps her mind in check for the best interest for them. I was so upset after the phone call I shook for like 30 minutes. I also made a formal complaint on this nurse.
Unfortunately my doctor was out of the office for 2 weeks due to an ill family member so I saw another pediatrician. Dr. Jacobs informed me that Preston was getting to the age where febrile seizures usually do not appear and since Preston was not having convulsions during his febrile seizure that this was "atypical". She said that after the third seizure it make them 30-60% more likely to form epilepsy later on in life. She also stated that since his febrile seizures were atypical that she was concerned about him having focal seizures or other kinds of seizures that we may not recognize. She immediately said that we needed to see a neurologist and have him worked up just to make sure nothing is going on that we may not know about. So on Feb 27th we are heading to CMH neurology to have an EEG done. An electroencephalogram (EEG) is a test that measures and records the electrical activity of your brain. Basically they hook electrodes on your head and measure brain activity. It can diagnosis seizure disorders or can explain loss of consciousness. The kicker is I have to keep P up until midnight the night before the test and only allow him to sleep until 4 am. Then I have to keep him up until the test (sch for 10 am) and guess what?! No chocolate milk 2 days before the test--If you do not know my kids they LOVE chocolate milk, they probably drink 2 gallons of chocolate milk a week. On top of that, P is not my easy going child, he is going to be a bear that day--I can already see the fits and tantrums that are going to go on--boy I feel sorry for the EEG tech and can only hope we don't have a meltdown during the exam. With Dexter being gone I will be doing this alone, which means I will only get 4 hours of sleep the night before and we all know what happens to our motherly patience we when are tired--it just goes right out the door. I will probably be having meltdowns right along with P. I just pray that this is nothing! With Dexter gone I do not know how I will be able to handle any bad news. To be honest I am totally worried and scared about having the test done--Denial is a bitch (sorry for the language mom).
Thursday, February 12, 2009
Saturday, February 7, 2009
Tired!
Well here I am exhausted! It has been a long week and I am thankful Dexter came home this weekend! Although I have barely seen him because I have had to work all weekend.
Let me begin to say that a 12 hour trip in the car with a 2 and 4 year old are fantastic times! We didn't get to leave last Wed. due to that TRI states receiving the biggest ice and snow storm in 13 years. I did manage to get out of town Thurs morning and let just say we didn't arrive to Ohio until about 1100 at night. The last two hours of our trip were horrible, the snow had started back up and you couldn't even see the road. I drove at 35 mph for about 2 1/2 hours! Thanks god for my friend Ashley, I drove and she tended to the kids. Lets just say I think P and E were a form a birth control for her. All in all they were very good for all things considered. The trip was very short and I felt like we barely saw Dexter. It was just nice for me to snuggle up with him at night. I think that is what I miss most. The trip ended with me getting sick with something "viral" as the Take Care clinic nurse said.
Thursday night E decided to run a fever, I woke up about 2 am and checked his temp and it was 103.8. This fever lasted until afternoon on Friday. It was crazy, you wouldn't even tell that E was sick. He didn't have a runny nose, cough or even acted like he didn't feel good.
Tonight has been very eventful! It seemed like a normal day, Dex, I and the boys played outside. Dexter and I dropped P off at a birthday party at 5:30. Luckily I went home after and Dex went to pick us up something to eat because at 6 I got a phone call from the birthday boys mom. Her voice was very frantic on the phone and said the Preston all of a sudden laid down on the floor and went limp. At first she thought that he was just playing and then when her husband picked him up he was still limp and not responding. The anxiety and fear rushed to me and I immediately picked him up. When I arrived he was still lethargic and pale as a ghost. I immediately put him in the truck and made him squeeze my hand all the way home. When I got home I checked his temp and it was 102.8. So lets just say in about 45 min he went from being fine to a fever. I assume he had another febrile seizure. He has had several of these in the last year. The pediatrician assures me that it is nothing to worry about that some kids get fevers so quick that their brains freak out and causes them to have the seizure. The things I read about on the Internet say that kids usually grow out of this about age 5 but I don't see it getting any better. Its scary but I think I am used to by now. So used to it that I still came to work, I was about 10 minutes late but still came. I thank god Dexter was at home because I don't know what I would have done if he was gone. And lets just say the poor birthday boys mom probably had a seizure herself. I am sure P will be the talk of school Monday since she is a teacher there. Luckily 4 year olds have no idea what goes on at times or else (as Meagan said) P would be known as seizure boy.
I will end my weekend tomorrow saying goodbye to Dexter. He is leaving tomorrow afternoon for 3 weeks and hopefully, no wait I mean, he better be home for good after that. I feel like I have barely seen or spent anytime with him since he has been home. This is the longest I have been away from him in 11 years and boy it sucks. Although, I have learned alot about myself while he has been gone.
I am just tired--Loving adulthood! Boy, there are days that I wish I could just go back to high school.
Let me begin to say that a 12 hour trip in the car with a 2 and 4 year old are fantastic times! We didn't get to leave last Wed. due to that TRI states receiving the biggest ice and snow storm in 13 years. I did manage to get out of town Thurs morning and let just say we didn't arrive to Ohio until about 1100 at night. The last two hours of our trip were horrible, the snow had started back up and you couldn't even see the road. I drove at 35 mph for about 2 1/2 hours! Thanks god for my friend Ashley, I drove and she tended to the kids. Lets just say I think P and E were a form a birth control for her. All in all they were very good for all things considered. The trip was very short and I felt like we barely saw Dexter. It was just nice for me to snuggle up with him at night. I think that is what I miss most. The trip ended with me getting sick with something "viral" as the Take Care clinic nurse said.
Thursday night E decided to run a fever, I woke up about 2 am and checked his temp and it was 103.8. This fever lasted until afternoon on Friday. It was crazy, you wouldn't even tell that E was sick. He didn't have a runny nose, cough or even acted like he didn't feel good.
Tonight has been very eventful! It seemed like a normal day, Dex, I and the boys played outside. Dexter and I dropped P off at a birthday party at 5:30. Luckily I went home after and Dex went to pick us up something to eat because at 6 I got a phone call from the birthday boys mom. Her voice was very frantic on the phone and said the Preston all of a sudden laid down on the floor and went limp. At first she thought that he was just playing and then when her husband picked him up he was still limp and not responding. The anxiety and fear rushed to me and I immediately picked him up. When I arrived he was still lethargic and pale as a ghost. I immediately put him in the truck and made him squeeze my hand all the way home. When I got home I checked his temp and it was 102.8. So lets just say in about 45 min he went from being fine to a fever. I assume he had another febrile seizure. He has had several of these in the last year. The pediatrician assures me that it is nothing to worry about that some kids get fevers so quick that their brains freak out and causes them to have the seizure. The things I read about on the Internet say that kids usually grow out of this about age 5 but I don't see it getting any better. Its scary but I think I am used to by now. So used to it that I still came to work, I was about 10 minutes late but still came. I thank god Dexter was at home because I don't know what I would have done if he was gone. And lets just say the poor birthday boys mom probably had a seizure herself. I am sure P will be the talk of school Monday since she is a teacher there. Luckily 4 year olds have no idea what goes on at times or else (as Meagan said) P would be known as seizure boy.
I will end my weekend tomorrow saying goodbye to Dexter. He is leaving tomorrow afternoon for 3 weeks and hopefully, no wait I mean, he better be home for good after that. I feel like I have barely seen or spent anytime with him since he has been home. This is the longest I have been away from him in 11 years and boy it sucks. Although, I have learned alot about myself while he has been gone.
I am just tired--Loving adulthood! Boy, there are days that I wish I could just go back to high school.
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