Thursday, February 12, 2009

Another long week!

After the eventful weekend with P I decided to call the doctor to inform them of the seizure he possibly had Saturday. At my pediatricians office you must call the triage line in order to make an appointment or talk to someone. I immediately got a call back. The triage nurse was one that I was familiar with and I have had problems in the past. After telling her the story of what happened she made a little chuckle and said to me "your telling me that a child had an altered level of consciousness and no one called 911 that is absurd" this totally set me off. I informed her that this has happened in the past and the last time it happened the doctor told me that there was nothing to do unless he went apneic. I informed her that the father of the birthday boy was a paramedic and that I was a pediatric nurse. We exchanged arguments for quite some time. I totally said a few words to her that were not appropriate (knowing the language I use) but I was so pissed off that she questioned my judgement as a mother. She made it seem like I did not have the best interest in my child. I went on to tell her the love a mother has for her kids always keeps her mind in check for the best interest for them. I was so upset after the phone call I shook for like 30 minutes. I also made a formal complaint on this nurse.
Unfortunately my doctor was out of the office for 2 weeks due to an ill family member so I saw another pediatrician. Dr. Jacobs informed me that Preston was getting to the age where febrile seizures usually do not appear and since Preston was not having convulsions during his febrile seizure that this was "atypical". She said that after the third seizure it make them 30-60% more likely to form epilepsy later on in life. She also stated that since his febrile seizures were atypical that she was concerned about him having focal seizures or other kinds of seizures that we may not recognize. She immediately said that we needed to see a neurologist and have him worked up just to make sure nothing is going on that we may not know about. So on Feb 27th we are heading to CMH neurology to have an EEG done. An electroencephalogram (EEG) is a test that measures and records the electrical activity of your brain. Basically they hook electrodes on your head and measure brain activity. It can diagnosis seizure disorders or can explain loss of consciousness. The kicker is I have to keep P up until midnight the night before the test and only allow him to sleep until 4 am. Then I have to keep him up until the test (sch for 10 am) and guess what?! No chocolate milk 2 days before the test--If you do not know my kids they LOVE chocolate milk, they probably drink 2 gallons of chocolate milk a week. On top of that, P is not my easy going child, he is going to be a bear that day--I can already see the fits and tantrums that are going to go on--boy I feel sorry for the EEG tech and can only hope we don't have a meltdown during the exam. With Dexter being gone I will be doing this alone, which means I will only get 4 hours of sleep the night before and we all know what happens to our motherly patience we when are tired--it just goes right out the door. I will probably be having meltdowns right along with P. I just pray that this is nothing! With Dexter gone I do not know how I will be able to handle any bad news. To be honest I am totally worried and scared about having the test done--Denial is a bitch (sorry for the language mom).

1 comment:

Emily said...

Oh Apes I hope everything is ok! If you need a day trade or anything that week just let me know. Emily